Daniel James Miller Foundation

Meet Danny

Held for the first time.

Daniel James Miller Jr. was born on January 6, 2010, to Kristin and Dan Miller, with autosomal recessive polycystic kidney disease (PKD). As a result of his PKD, Danny’s kidneys were approximately four times their expected size. Although oversized, Danny’s kidneys were still functioning at the time of his birth. When Danny was 2-1/2 months old, however, he fell ill and his kidneys shut down. He was admitted into the Pediatric Intensive Care Unit at the Children’s Hospital of Philadelphia (CHOP) for a period of two months. For the duration of his stay at CHOP, Danny was kept under near-constant 1:1 nursing care, fed through the use of liquid meals and feeding tubes and began his daily dialysis treatments which continue to this day. Dan and Kristin lived in the hospital with Danny, with Dan often commuting from Philadelphia to northern New Jersey in order to train. The care Danny received while at CHOP was exceptional, and in May of 2010 he was cleared to return home for the first time since March.

Meeting lil' sis for the first time.

Once home Danny quickly grew into life surrounded by his entire loving family. In addition to playing with the family dogs, Danny recently helped welcome his younger sister Katie to the family. Although Danny’s day-to-day life has seen great improvement, his recovery will remain a long process. The PKD has led to difficulties regulating Danny’s hormone levels, and as a result he has developed physically at a slower rate, and now is undergoing physical therapy to help build up his strength. The exercises are often difficult, but like the fighter he is he has soldiered on. Danny must also undergo daily dialysis to replace the kidney function he no longer has.

Dan loves the pups.

In order to regain proper kidney function Danny must undergo a kidney transplant. Although a living-donor has been found and a date for the donation is set, there is still a lot of work to do. Danny recently underwent a double nephrectomy, meaning both of his kidneys were removed in order to make room for the donor kidney. Danny remains on dialysis prior to the transplant surgery, and will need to remain on costly anti-rejection medication for the remainder of his life. By donating to Danny’s cause you will help to offset the high costs of these life-saving medications and also to help cover the cost of the nephrectomy for the living donor, which is an expensive procedure deemed elective for the donor, and as a result will not be covered by insurance.

 


14 responses to “Meet Danny

  1. Leon Degtar says:

    I’ve trained under Chris Wing and he has always had nothing be nice things to say about Dan. My prayers and go out to you and your family. I hope my donation helps and I will do my best to promote your foundation. Praying Dan Jr has a successful and smooth procedure.

    God bless,
    Leon

  2. Jesus Corrales says:

    Good luck Danny!!!

  3. Greg says:

    Happy to make a donation. Good luck Danny! Keep fightin’!!!

  4. Keith Farrell says:

    A fan of Dan Miller as a fighter and a person, seems to be one of the really good guys. He is 100% heart and I’m sure he will raise his son to be the same as him and his brother Jim. I’ve helped out as much as I can the now, got over 100k people to potentially see this story hopefully Daniel Jr. can benefit from it. Good luck to everyone involved with Dan and Daniel jr. Miller.

  5. joe doerr says:

    Huge mma fan. I follow the sport closely and have since 1993. I’m a regular at mmamania.com, the best mma website out there. I don’t know you personally but I don’t need to. No one should ever have to feel the kind of pain you and your family have felt. Mmamania.com has links up to your site and I (ABB) am actively campaigning for support for your cause, beginning with a donation of my own. Good luck. Danny’s gonna be fine. There’s far too much love out here for him. I’m in the bay area, Cali, and will be making sure we get money moving your way from this side of the country.

  6. Jim Halton says:

    Hope this helps, best of luck to you all.

  7. Anthony Kendall says:

    What a little warrior… Just as his little life begins, he’s fighting for his life against an opponent tougher than any most of us will ever have to fight.. And he’s winning! Wow…such an inspiration! He will be tough in every way after he wins this fight!
    You guys are all in my prayers.
    Sincerely,
    Anthony K

  8. Josh says:

    Just wanted to wish little Danny and his family the best. Such an inspiration. This link has been posted on mmaforum.com where I am a regular. I’ll be passing the link out to this foundation to a potential 2,000 or more people and be making my own donation as soon as I can.

    Little Danny you are a true warrior! Wish you and your family nothing, but the best.

  9. David says:

    Hi Dan,

    I read your story on mmajunkie and feel absolutely awful. I hope my donation helps and more people do the same.

    Will keep you in my prayers

  10. davey says:

    I always love watching miller fights. glad i could help.

  11. [...] work buddy sent out an email the other day for his friend whose kid needs a kidney transplant. I’m not exactly rolling in the dough at the moment, but I sent them a small donation. [...]

  12. Ken Gladky says:

    Big fan of MMA and new father. Can’t imagine what that like. Good luck to Danny.

  13. James says:

    Another mmamania head here, they support your cause and I know the mma community as a whole do too. All the best from the UK. All the best wishes and hopes for you and your family’s future!

  14. Rabecca says:

    I am so thank full to Dan and his family for helping raise awareness for PKD. MY family suffers from the same disease. My husband and father in law have the genetic form of PKD. in 2008 I donated MY kidney to my father in law. My husband and I have 3 children who each have a 50′% chance of having the disease as well, but testing them can harm their chances of having sufficient life insurance or medical insurance in the future…so for now we wait, pray and hOPE a cure comes soon. Thank you to Jim Miller and AMA Fightclub for donating to our online Auction supporting the PKD FOUNDATION. here is a link if you are interested…We are the San Diego Chapter…but all the money is going to the same place.

    http://www.facebook.com/media/set/?set=a.401483896533024.113501.359313950750019&type=3

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